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2023 January – Focus on Wellness – Story 1

September 14, 2023January 11, 2023 by Titin Myopathy

As people focus on wellness in the New Year please enjoy this story about how one child with titinopathy found wellness and happiness doing adaptive fencing.

Categories Titinopathy Tags adaptive sports, fencing, titin, titin myopathy, titinopathy, TTN

What’s in a name? Titinopathy vs. Titin Myopathy

September 14, 2023June 21, 2021 by Titin Myopathy

What is a Titin Myopathy? Terminology: “Titin Myopathy” versus “Titinopathy” How severe are Titin Myopathies?

Categories Titinopathy Tags titin, titin myopathy, titin protein, titinopathy, TTN

Recent Posts

  • Genetic CardioMYopathy Awareness Consortium
  • 2023 January – Focus on Wellness – Story 2
  • 2023 January – Focus on Wellness – Story 1
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