Month: May 2026

Join Team Titin at 2026 MDA Engage Events in Hershey and Chicago

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Join Team Titin at 2026 MDA engage in Hershey July 18 and Chicago Sept 26

Team Titin is excited to share that we will be participating in two upcoming MDA Engage Community Education events in 2026: one in Hershey, Pennsylvania and one just outside Chicago, Illinois. These free, in-person events hosted by the Muscular Dystrophy Association bring together people living with neuromuscular disease, caregivers, clinicians, advocates, nonprofit organizations, and industry … Read more

Overview of Neuromuscular Breathing Weakness: What the Titin Community Should Know

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Breathing weakness is an important topic for many people and families living with titinopathies. Changes in the TTN gene can cause a broad spectrum of muscle and heart disorders, and for some individuals, this can include weakness of the muscles used for breathing, coughing, and clearing secretions. Team Titin recently hosted the webinar “Overview of … Read more