Grant Funding Update: Building New Models to Advance Titinopathy Research

With the generous support of our community, Team Titin awarded $50,000 over two years to Isabelle Richard, PhD, Principal Investigator and Head of the Progressive Muscular Dystrophies Laboratory at Genethon. Dr. Richard conducted this work in collaboration with Sonia Albini, PhD, and Edoardo Malfatti, MD, PhD. Their project, “Generation and characterization of skeletal muscle organoids … Read more

“New Year, New You”: Heart-Healthy Lifestyle Tools for People with Titin (TTN)-Related Heart Conditions

At Team Titin, we know that living with a TTN-related heart condition – or carrying a TTN variant that may increase heart-related risk can bring many questions. That is why we were grateful to host our educational webinar, “New Year, New You: Heart-Healthy Lifestyle Tools for People with Titin (TTN)-Related Heart Conditions,” on January 28, … Read more