If you or someone you love has been diagnosed with, or is being evaluated for, a health condition related to the TTN gene, you may be encountering unfamiliar terms such as titin myopathy, titin muscular dystrophy, titinopathy, TTN-related disorder, or TTN gene disorder. Learning that a genetic change may be affecting your muscles or heart … Read more
Team Titin Joins Global Heart Hub for Cardiomyopathy Awareness Month 2026 This June, Team Titin is proud to partner with Global Heart Hub, the international alliance of heart patient organizations, for Cardiomyopathy Awareness Month 2026. This year’s campaign theme is: Think Cardiomyopathy: Know Your Heart History Sometimes, the first clue to a heart condition is … Read more
At Team Titin, we know that living with a TTN-related heart condition – or carrying a TTN variant that may increase heart-related risk can bring many questions. That is why we were grateful to host our educational webinar, “New Year, New You: Heart-Healthy Lifestyle Tools for People with Titin (TTN)-Related Heart Conditions,” on January 28, … Read more