SciFam

Highlights from 2025 SciFam: Stronger Together

September 15, 2025 by Sarah Foye, Team Titin

August 1- 4, 2025 • Philadelphia, PA Team Titin, together with our partners Cure CMD and A Foundation Building Strength for Nemaline Myopathy, proudly hosted the 2025 SciFam Conference – a four-day gathering for the congenital muscular dystrophy, nemaline myopathy, and titinopathy communities. More than 344 attendees – including affected individuals, families, caregivers, clinicians, researchers, … Read more

2025 SciFam: our in-person conference

March 5, 2025 by Sarah Foye, Team Titin

Registration is now open for SciFam, a four-day, in-person event for stakeholders in congenital muscular dystrophy, nemaline myopathy, and titinopathy. 2025 SciFam will take place August 1-5 in Philadelphia USA and is hosted by Cure CMD, A Foundation Building Strength, and Team Titin. Learn more at SciFam.info.