Honoring Douglas Huss Through Support for HMERF Research
The titin community understands that rare disease affects more than an individual. It touches families, sometimes across generations, and can shape lives in profound ways. This summer, our community experienced the loss of Douglas “Doug” Huss, a beloved husband, father, grandfather, family member, and friend who lived with Hereditary Myopathy with Early Respiratory Failure (HMERF). … Read more