Skip to content
  • HOME: Titin
    • Titin Myopathy and Titin Muscular Dystrophy
  • Welcome
  • Genetics
  • Care
  • Research
    • Publication Library
  • Grant
  • Resources
  • BLOG
  • Videos
  • About Us
  • Donate
  • In memorial
    • Grief Support Resources

Month: March 2025

2025 SciFam: our in-person conference

March 5, 2025 by Sarah Foye, Team Titin

Registration is now open for SciFam, a four-day, in-person event for stakeholders in congenital muscular dystrophy, nemaline myopathy, and titinopathy. 2025 SciFam will take place August 1-5 in Philadelphia USA and is hosted by Cure CMD, A Foundation Building Strength, and Team Titin. Learn more at SciFam.info.

Categories General Tags SciFam, Team Titin, titin myopathy, titinopathy, TTN

Recent Posts

  • Titinopathy Awareness Cards: A Tool for Sharing, Explaining, and Advocating
  • Think Cardiomyopathy: Know Your Heart History
  • Join Team Titin at 2026 MDA Engage Events in Hershey and Chicago
  • Overview of Neuromuscular Breathing Weakness: What the Titin Community Should Know
  • Team Titin Partners with Citizen Health: Putting Your Data to Work for You – and for Research

Recent Comments

    Archives

    • June 2026
    • May 2026
    • April 2026
    • March 2026
    • February 2026
    • January 2026
    • September 2025
    • August 2025
    • June 2025
    • April 2025
    • March 2025
    • December 2024
    • November 2024
    • September 2024
    • June 2024
    • April 2024
    • February 2024
    • May 2023
    • January 2023
    • November 2022
    • October 2022
    • September 2022
    • May 2022
    • December 2021
    • November 2021
    • June 2021
    • May 2021
    • April 2020
    • February 2018
    • November 2017
    • December 2016
    • October 2012

    Categories

    • General
    • Heart issues
    • LGMD
    • Titinopathy
    • TTN research

    © 2026 • Built with GeneratePress
    Manage Consent
    To provide the best experiences, we use technologies like cookies to store and/or access device information. Consenting to these technologies will allow us to process data such as browsing behavior or unique IDs on this site. Not consenting or withdrawing consent, may adversely affect certain features and functions.
    Functional only Always active
    Functional cookies help our website work properly and support features visitors choose to use, such as forms, embedded content, security, and remembering cookie preferences. These cookies do not track visitors for advertising.
    Preferences
    The technical storage or access is necessary for the legitimate purpose of storing preferences that are not requested by the subscriber or user.
    Allow statistics
    Statistics cookies help us understand how visitors use the Team Titin website, such as which pages are visited and which resources are most helpful. This helps us improve our information and outreach. These cookies are optional and are not used to sell personal information. The technical storage or access that is used exclusively for anonymous statistical purposes. Without a subpoena, voluntary compliance on the part of your Internet Service Provider, or additional records from a third party, information stored or retrieved for this purpose alone cannot usually be used to identify you.
    Marketing
    The technical storage or access is required to create user profiles to send advertising, or to track the user on a website or across several websites for similar marketing purposes.
    • Manage options
    • Manage services
    • Manage {vendor_count} vendors
    • Read more about these purposes
    View preferences
    • {title}
    • {title}
    • {title}