Titinopathy Awareness Cards: A Tool for Sharing, Explaining, and Advocating
Living with a rare TTN-related condition can mean constantly explaining something that most people have never heard of before. For many families, those explanations happen in doctor’s offices, classrooms, therapy clinics, community settings, and even in everyday moments when people may stare or ask questions. Team Titin created Titinopathy Awareness Cards to help make those … Read more