TTN research

New partnership with Citizen Health

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Team Titin and Citizen Health logos

Team Titin is thrilled to announce a new partnership with Citizen Health! Citizen Health is a platform designed specifically for individuals managing rare and complex conditions like TTN (titin) – related muscle and heart disorders. Their mission is simple: to empower patients to drive their care and research through their own health data and accelerate … Read more

Research update from Jennifer Roggenbuck, MS, CGC – June 2025

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This is an update as of June 2025 on the research project funded by Silvey Family Foundation and Team Titin. This research is being conducted by Jennifer Roggenbuck, MS, CGC, Professor of Neurology at The Ohio State University Wexner Medical Center, along with collaborators at The University of Arizona. “Harmful changes in the TTN gene … Read more