2023 January – Focus on Wellness – Story 1
As people focus on wellness in the New Year please enjoy this story about how one child with titinopathy found wellness and happiness doing adaptive fencing.
titinopathy
What’s in a name? Titinopathy vs. Titin Myopathy
What is a Titin Myopathy? Terminology: “Titin Myopathy” versus “Titinopathy” How severe are Titin Myopathies?