General

Managing breathing is one of the most important factors to maintain overall health and longevity for people with muscle weakness.  Because titinopathies cause such a wide variety of health issues in different people, it is good for most people to get a regular evaluation of respiratory (breathing) health. This is a link to a great … Read more

The year my son got the flu he missed 63 days of school.  He was exhausted for months afterwards.  It was a very difficult time for our family and not one we’d like to go through again.  The flu can make you miss work, school or even be hospitalized. People with muscle disease are at … Read more