SciFam: Team Titin’s Family + Clinician + Researcher conference!

Registration is now open for the 2022 SciFam conference! This is an opportunity for individuals affected by titin related muscle and heart disorders and their families to connect with experts. Team Titin has partnered with the Cure CMD and A Foundation Building Strength to offer a fantastic program, including Kids Camp. The family conference starts on Friday, July 1 at 4:30 pm CT through Sunday, July 3 at 3:30 pm CT. You can learn about best care practices for relevant day-to-day health challenges, get research updates and connect with others on a similar journey. You can find the preliminary agenda on the website. Please register here:

Team Titin and the SciFam planning team look forward to welcoming you all to 2022 SciFam!!