Heart-Healthy Lifestyle Tools for People with Titin (TTN) – Related Heart Conditions
Please join Team Titin for a free educational webinar designed for individuals and families affected by TTN-related heart conditions or who carry variants in the TTN gene and may be at risk for heart health concerns.
Date: January 28, 2026
Time: 6:00–7:15 PM ET
Format: Live Zoom webinar with expert Q&A
As we begin a new year, this webinar will focus on practical tips to help you better understand your heart health and feel empowered to take proactive steps – alongside your healthcare team.
You’ll learn about:
- An overview of TTN-related heart conditions
- Highlights from recent research in titin and heart health
- Lifestyle and environmental factors that may influence heart health
- Exercise considerations for people with TTN-related cardiomyopathy
- Current recommendations for the care and management of heart conditions
- A live question-and-answer session with our experts
Featured Speakers
Professor Diane Fatkin, MD
Professor Fatkin is a molecular cardiologist and internationally recognized expert in inherited heart diseases, with a particular focus on familial dilated cardiomyopathy (DCM) and atrial fibrillation, including conditions caused by changes in the TTN gene.
Dr. Renee Johnson, PhD
Dr. Johnson is a clinical research coordinator and genetic counsellor specializing in dilated cardiomyopathy and atrial fibrillation. Her work focuses on understanding the genetic causes of these conditions and supporting individuals and families through research participation and clinical care.
Both speakers are long-standing collaborators with the titin community, and we are deeply grateful for their willingness to share their expertise with Team Titin families.
Click here to register for the webinar (Registration required.)
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We hope you’ll join us for this meaningful and empowering conversation as we work together toward better heart health in the titin community.
