Heart issues

Genetic CardioMYopathy Awareness Consortium

January 3, 2024May 23, 2023 by Sarah Foye, Team Titin

Did You Know? Approximately half of all patients diagnosed with cardiomyopathy in the U.S. have some type of genetic cause, while only about one percent of cardiomyopathy patients get genetic testing for their cardiomyopathy. Truncating variants in the TTN (titin) gene are the most common cause of inherited cardiomyopathy. The Genetic Cardiomyopathy Awareness Campaign was … Read more

Where to get good cardiac care?

September 14, 2023November 6, 2017 by Sarah Foye, Team Titin

Variants in the Titin gene are known to cause some heart problems in some people. If you are wondering where to get a good heart evaluation and treatment here is a great resource available for you. The Children’s Cardiomyopathy Foundation has recognized medical centers with expertise in pediatric cardiomyopathy. A designated CCF-accredited center of care provides … Read more