Advancing Research and Care in the Congenital Muscular Dystrophies (CMD), Nemaline Myopathy, and Titinopathy – Join Us at the 2025 SciFam Conference (SciFam.info)
April 15, 2025: Cure CMD, A Foundation Building Strength, and Team Titin are thrilled to announce the return of the highly-anticipated 2025 Scientific & Family (SciFam) Conference, taking place August 1–5, 2025 at the Hilton Philadelphia at Penn’s Landing.
Philadelphia, PA — August 1–5, 2025 — The 2025 Scientific & Family Conference (SciFam) is a premier cross-disciplinary gathering for clinicians, researchers, individuals living with congenital muscular dystrophy (CMD), titinopathy, nemaline myopathy, and related neuromuscular conditions, along with their caregivers.
Building on the success of previous conferences, SciFam has become a cornerstone event for advancing collaboration, education, and progress in the rare neuromuscular disease space. With a community-led approach to research and care, SciFam centers the experiences and priorities of those living with one of these conditions — ensuring that scientific discovery is guided by real-world needs and lived experience.
Whether you’re developing treatments, providing care, navigating life with one of these diagnoses — or supporting someone who is — SciFam offers a platform to engage, learn, and lead.
The 2025 SciFam Conference will feature a robust program designed to serve a diverse community of stakeholders:
- Friday, August 1: Afternoon Welcome Reception and Evening Social Activities
- Saturday, August 2: Affected/Family Plenary Sessions, Subtype-Specific Programming, Teen & Young Adult Programming, Kids Camp, and Evening Social Activities
- Sunday, August 3: Plenary and Organization-Specific Sessions, Bonus Sessions addressing Quality of Life and Daily Living, Kids Camp, and a Poster Session open to all attendees
- Monday/Tuesday, August 4-5: Scientific Symposium. This meeting is for researchers and clinicians with presentations and discussions for an expert audience.
The conference will feature cutting-edge research updates, practical care insights, and dynamic networking opportunities with peers and experts from around the world.
PLEASE NOTE: SciFam will not include sessions supporting Duchenne Muscular Dystrophy, SMA, ALS, or other neuromuscular conditions not indicated, and therefore may not be appropriate for clinicians or families focused on these subtypes.
REGISTRATION IS NOW OPEN
This is an open invitation to all stakeholders, including individuals and families affected by these conditions, healthcare professionals, researchers, industry representatives, and other advocates. To view the full agenda and secure your spot, visit: www.SciFam.info
Have questions? Get in touch at SciFam.info/contact
Cure CMD is a nonprofit organization whose mission is to advance research toward treatments for the congenital muscular dystrophies and empower those living with CMD through engagement and support of our community.
A Foundation Building Strength is a nonprofit with the mission to find treatments for Nemaline Myopathy (NM). AFBS works to address issues for NM families from all angles, including advancing research, providing information about care, offering family support groups and ways to connect, and creating opportunities for community interaction and education.
Team Titin is a nonprofit with the mission to serve those living with, caring for, or researching TTN (titin)-related muscle and heart disorders. To achieve this mission, the organization focuses on four key pillars: Connection, Advocacy, Care, and Research.
Media Contact:
SciFam 2025 Conference Planning Team: SciFam.info/contact
Cure CMD | A Foundation Building Strength | Team Titin
www.SciFam.Info
