Skip to content
  • HOME: Titin
    • Titin Myopathy and Titin Muscular Dystrophy
  • Welcome
  • Genetics
  • Care
  • Research
    • Publication Library
  • Grant
  • Resources
  • BLOG
  • Videos
  • About Us
  • Donate
  • In memorial
    • Grief Support Resources

adaptive sports

2023 January – Focus on Wellness – Story 1

September 14, 2023January 11, 2023 by Sarah Foye, Team Titin

As people focus on wellness in the New Year please enjoy this story about how one child with titinopathy found wellness and happiness doing adaptive fencing.

Categories Titinopathy Tags adaptive sports, fencing, titin, titin myopathy, titinopathy, TTN

Recent Posts

  • Attention All Stakeholders: The Scientific & Family Conference for Congenital Muscular Dystrophy, Nemaline Myopathy, and Titinopathy
  • 2025 SciFam: our in-person conference
  • 2024 Highlights: Team Titin’s Year of Connection, Care, Advocacy, and Research
  • Advancing Knowledge for Patients with Titin-Related Centronuclear Myopathy through the TREATIN Project
  • LGMD Awareness Day: an advocates personal journey

Recent Comments

  • Deb on In memorial

Archives

  • April 2025
  • March 2025
  • December 2024
  • November 2024
  • September 2024
  • June 2024
  • April 2024
  • February 2024
  • January 2024
  • May 2023
  • January 2023
  • November 2022
  • October 2022
  • September 2022
  • May 2022
  • December 2021
  • November 2021
  • June 2021
  • May 2021
  • April 2020
  • February 2018
  • November 2017
  • December 2016
  • October 2012

Categories

  • General
  • Heart issues
  • LGMD
  • Titinopathy

© 2025 • Built with GeneratePress