Managing breathing is one of the most important factors to maintain overall health and longevity for people with muscle weakness. Because titinopathies cause such a wide variety of health issues in different people, it is good for most people to get a regular evaluation of respiratory (breathing) health.
This is a link to a great video made by Dr. Reghan Foley from the National Institutes of Health. In this video she covers a lot of critical information! Please watch: Proactive Respiratory Care in Congenital Muscle Disease.