Skip to content
  • HOME: Titin
    • Titin Myopathy and Titin Muscular Dystrophy
  • Welcome
  • Genetics
  • Care
  • Research
    • Publication Library
  • Grant
  • Resources
  • BLOG
  • Videos
  • About Us
  • Donate
  • In memorial
    • Grief Support Resources

Month: March 2025

2025 SciFam: our in-person conference

March 5, 2025 by Sarah Foye, Team Titin

Registration is now open for SciFam, a four-day, in-person event for stakeholders in congenital muscular dystrophy, nemaline myopathy, and titinopathy. 2025 SciFam will take place August 1-5 in Philadelphia USA and is hosted by Cure CMD, A Foundation Building Strength, and Team Titin. Learn more at SciFam.info.

Categories General Tags SciFam, Team Titin, titin myopathy, titinopathy, TTN

Recent Posts

  • Attention All Stakeholders: The Scientific & Family Conference for Congenital Muscular Dystrophy, Nemaline Myopathy, and Titinopathy
  • 2025 SciFam: our in-person conference
  • 2024 Highlights: Team Titin’s Year of Connection, Care, Advocacy, and Research
  • Advancing Knowledge for Patients with Titin-Related Centronuclear Myopathy through the TREATIN Project
  • LGMD Awareness Day: an advocates personal journey

Recent Comments

  • Deb on In memorial

Archives

  • April 2025
  • March 2025
  • December 2024
  • November 2024
  • September 2024
  • June 2024
  • April 2024
  • February 2024
  • January 2024
  • May 2023
  • January 2023
  • November 2022
  • October 2022
  • September 2022
  • May 2022
  • December 2021
  • November 2021
  • June 2021
  • May 2021
  • April 2020
  • February 2018
  • November 2017
  • December 2016
  • October 2012

Categories

  • General
  • Heart issues
  • LGMD
  • Titinopathy

© 2025 • Built with GeneratePress