Sarah Foye, Team Titin

Vaccinate your family

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The year my son got the flu he missed 63 days of school.  He was exhausted for months afterwards.  It was a very difficult time for our family and not one we’d like to go through again.  The flu can make you miss work, school or even be hospitalized. People with muscle disease are at … Read more

About Titin Myopathy (Titinopathy)

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What is Titin? Titin is a very large protein. In fact, it is the largest protein known to exist in the human body. The titin protein is located in each of the individual muscle cells within the muscles that move our bodies. In muscle cells, titin is part of the sarcomere, which is responsible for … Read more