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Month: May 2021

2021 Update- The Care of Congenital Myopathy: A Guide for Families

October 28, 2021May 17, 2021 by Sarah Foye, Team Titin

This is a wonderful resource for families to learn more about getting the best care in a wide range of clinical areas. Click HERE for a PDF version of this document. The Care of Congenital Myopathy: A Guide for Families is a comprehensive care guide developed for families and people with congenital myopathy (CM) in response … Read more

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