Titin Myopathy

All about Titin Protein, Titin Myopathy, Titinopathy, Titinopathies

Titin Myopathy - All about Titin Protein, Titin Myopathy, Titinopathy, Titinopathies

In memorial

On this page we honor those who have lost their battle with Titin related health conditions.

Understanding Titin is complex and our need to understand it better is urgent.

 

Wayne was diagnosed with an unknown muscular dystrophy in childhood.   He got a Titin genetic diagnosis in 2014. He died December 22, 2015 from cardiac failure at age 44.  Rest in peace, Wayne.

 

  • Deb says:

    My beautiful kind brother would be so proud to be helping to educate the future research to help others. RIP my hero xxx

    May 13, 2016 at 12:37 am

Your email address will not be published. Required fields are marked *

*