Month: November 2017

Where to get good cardiac care?

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Variants in the Titin gene are known to cause some heart problems in some people.  If you are wondering where to get a good heart evaluation and treatment here is a great resource available for you. The Children’s Cardiomyopathy Foundation has recognized medical centers with expertise in pediatric cardiomyopathy. A designated CCF-accredited center of care provides … Read more

Respiratory Management

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Managing breathing is one of the most important factors to maintain overall health and longevity for people with muscle weakness.  Because titinopathies cause such a wide variety of health issues in different people, it is good for most people to get a regular evaluation of respiratory (breathing) health. This is a link to a great … Read more